
Work and Occupations
A Note From My Memoir...
This is a chapter of my employment and volunteer work, starting during school and working through my previous jobs in the disability and mental health sectors. This explores a range of volunteer work I have undertaken in between and gives a perspective on where this may lead me in the future.
My First Jobs
Growing up with a father as a piano teacher had its benefits. It meant that because he was at capacity growing up, each of us boys managed to secure his extra students as our first piano students. I started at 13 to get some extra pocket money, and it was a lot of fun. Dad had taught a lot of preschool music and had developed a fun and easy-to-learn method of learning the piano. He gave us basic tips, and I went from there.
I spent hours researching the beginner piano teaching lesson book before my first lesson and had written out a comprehensive plan. Finally, I was ready to teach my first student. I took the preschool techniques and made them my own. Lucky to be learning on a baby grand piano. It was not all about playing the piano. The students marched around the lounge room to 'Charlie Crotchet likes to walk.' Stamping their feet slower to 'Madam Minim likes to stomp.' And laying on the ground as if falling to sleep to 'Big Fat Whole Note Likes to sleep.' As they progressed from the basic holding pattern on the piano, they progressed to using their fingers as numbers before learning to count to basic rhythms. Soon they were ready to read the introductory notes on the stave learning the patterns ‘Every Good Boy Deserves Fruit' and 'FACE.'
Because it was fun, most of the students progressed fast. At the start of each session, we would start by reviewing the practice sheet. Every half-hour session ended with a game, usually memory or snap. This would often lead to the next student's class, and they would compete. Because many were adept with their practice routines, many were soon ready for the end-of-term Monday afternoon parties and received my end-of-term assessment. Regardless of their progress, I always found positives in what they did to encourage them to continue practising hard and doing their best. This progressed from one day to two and sometimes a third. It was a lot of fun for me, and many of the students who have now grown up have seen me in the street and told me that they were some of the best times of their lives.
I started doing a small kitchen hand job on a Friday night to earn a bit extra cash again. It was down at the local Chinese place where I was in the kitchen from 5:30 to 8:30 p.m., slaving away and washing the dishes. When I arrived, the dishes would be piled up high, and I never seemed to get to the bottom of the work. I received a gracious six dollars per hour for my hard work. This was pure 'character-building' work. I used to look forward to the end of the shift, where they occasionally put on a delicious feed of leftover fried rice.
This looked good on my resume and landed me a gig as a waiter at the classy Ritz restaurant. The first night was Valentine's Day. It was not just my first shift but the first night that the new owner had taken over. The two large rooms were full of anticipation as the previous owners had built it into one of Sydney's most successful restaurants. It was, however, me on my first shift, with no training, and a boss run off her feet. I received a lot of abuse that night and for the rest of the time I worked at the Ritz restaurant, as people were waiting hours for their meals. The kitchen could not keep up with demand.
The following shifts were less busy and less stressful. Unfortunately, we did not get the numbers back in the Ritz, and the reputation slowly declined. From what would have been 60 or 70 tables full on the first night, we would have been lucky to fill 10 for the rest of the time I was at the restaurant. They started employing more people, and they had a lot more experience, but the damage had been done. The reputation had been destroyed. It was different from the Ritzy restaurant that the name and the earlier reputation suggested.
I did that job on and off, without any training, for a year or two. I sometimes got called in on a Saturday night, but I often had a full day at cricket from 8:30 am to 6:00 p.m., where I had been in the heat all day. That was also the time when things were difficult at home. Too much was going on, and I could not dedicate myself to my work at that point.
Advocacy Work
I had a long break between employment from my early school days, as I spent most of my 20s unemployed living off the Disability Support Pension (DSP). I could not work while at the university, and during my first year living at HAC, I did a year of TAFE. My days at HAC were filled with studying a variety of topics.
Sigrid found an advertisement in the Hawkesbury Gazette for the Hawkesbury District Health Service Community Board of Advice (CBOA), a committee of prominent local leaders at the Hawkesbury Hospital. I was uncertain about this role, but I secured an interview. I had just finished my master's and had a lot of public health terminology running through my brain.
I was so nervous because a young lawyer was going for the same position. She was a mother, and I felt she had a reputation beyond anything old me. I remember going in with an 'it doesn't matter' attitude because this other woman was sure to get the position. Unfortunately, the interview questions struck me, so I left the interview thinking that I would never get the position. The interview questions focused on 'What part of the hospital would you most like to change?' Looking back, my answer was genius. I said that I would improve emergency waiting times and customer service.
I must have been impressed because I got the position. The pretty young lawyer was Sarah Richards, who is now Hawkesbury City Council's mayor. They chose me above her. I did have some great ideas, and the CBOA was an excellent capacity-building method. We had to do all the hospital accreditation, got invited to all the essential functions, and occasionally did some excellent training on topics such as advocacy campaigns. As I started to get to know the other committee members, I realised that I was rubbing heads with the prominent decision-makers in the Hawkesbury Community. We had great opportunities to learn about what was happening in the hospital and hear what was happening from a CEO's perspective. The board oversaw what was happening in the hospital and the Hawkesbury Community.
As my public health ideas began to make their way into the committee, members would go out into the community groups in Hawkesbury and give feedback to the committee on what the other groups were doing. I got the immense joy of going to the Hawkesbury Youth Interagency (HYI) and Hawkesbury Community Forum, where I got to meet all the community workers in the youth and aged care sectors. I got the immense joy of reporting their activities back to the group. This also led to other activities that these forums were undertaken. I was invited to more events. And I was taking part in as much training as was available. I was not working, but I had a full-time occupation.
As my 30th birthday was approaching, I was travelling around a bit. First, I visited my friend, Luke, in Brisbane and toured my spiritual home, the Northern Rivers. I spent a week or so in Kyogle. I pitched my tent in the Kyogle Showground, where I was protected from the heavy rain. Then, carrying all my gear, I caught the bus into Lismore, which I used as my base for the following week. From this base, I went on day trips, using my $2.50 pension card, to catch the bus to spend days exploring the towns of Nimbin, Lismore, Ballina, and Lennox Head. Between these day trips, I explored Lismore and took a few trips to the Southern Cross University Library to study.
After my adventure in Far Northern New South Wales, I returned to stay with my parents. Farter had temporarily 'disowned' me and told me he did not want to support me anymore but had forgiven me enough to let me stay overnight. Using this as a base, I used one of my free train trips to Griffith, where I stopped at Coonabarabran on the way to Griffith. Whilst in Coonabarabran, I enjoyed spending a small amount of time at the birthplace of the legendary Don Bradman, who we have recently found out is a relative of ours.
I was looking forward to seeing my cousins Michael and Wendy and their two children, Rosie and Caleb, who recently moved out to Griffith to start a new life. They previously lived in Cranebrook, where I routinely gave Michael and Wendy acupuncture nearly every Wednesday evening for a short period. Michael used to say, 'I can feel the shit getting out of the body.'
I was only invited over to keep Rosie occupied. At the time, Rosie was one or two, and it was my job to keep her entertained with games of 'Flashlight' and 'Hide and Seek.' So, with my history of entertaining Rosie, it was nice to get out to Griffith to see my beloved cousins. I was greeted by a hyperactive Digger, a beautiful Border Collie pup who was eager to see any visitor at the time. He jumped up on me and got acquainted with me very quickly.
Whilst out at Griffith, I spent time exploring the council chambers and the library, as I often do in any new town. Griffith is a beautifully designed town by the same town planner that designed Canberra, Burley Griffin. On the first day, Wendy took me to the Tourist Information Centre, where I got acquainted with the region's history and learnt about the significance of the Riverina as one of the primary agricultural lands in Australia. In addition, I learnt about the professionally managed and supported canal system that ensured the region's water supply was.
One of the reasons I was out in Griffith was to promote the Youth Council idea for which I had applied for grants. I had researched youth services and was discussing the idea with the Hawkesbury Youth Interagency then. I aimed to create a 'council' of young people amongst school students so that they could discuss and debate discussion points at a council level from a youth perspective. I sat down with the youth advisor from the council, and she was impressed with the idea and thought it could work out for Griffith.
Upon researching Youth Advisory Groups as part of the Youth Council document I was putting together; I came across a life-changing discovery. I discovered that there were Mental Health Advisory Groups and that people with lived experience with mental health often ran them. I came across the ACT Mental Health Consumer Network (ACTMHN) and found out they were running self-advocacy groups for people with lived experience of mental health. I never knew this was a thing, but I raised the idea with Wendy.
Wendy thought this idea was excellent, but only started for a few days. However, she said she would drive me four hours to Canberra if I wanted to do the course. I was brimming with excitement as I could see the benefits of taking the course. It would be a six-week course, but I thought I had committed to five and a half years of university, so what was another six weeks?
Wendy also said that in the days between those, she would be happy to drive me to Leeton to see my friend Didge, who was living there then. It would also give her a chance to see one of her friends living nearby. So, I had a wonderful day with Didge in this other town designed by Burley Griffin. Didge's father was one of the elders in the town. It was a sweltering day, but memorable.
It came to the day when we were heading to Canberra, and Wendy drove the four hours through the Riverina to the country's capital. Once there, I reacquainted myself with one of my old favourite restaurants for a feed. After that, I found my way to the Canberra Centre and began this course. I completed the first session, then caught the bus out to my campsite for the night and set up my tent. After the course, I caught the train home to be with my family, who had now completely forgiven me.
I would spend the next six weeks travelling down to the course. I would leave on Tuesday morning and arrive in the afternoon to get to the course for a 1:00 p.m. start. After the training, I would head out to my campsite to set up for the day. I would then catch the bus back into town for the course and catch the train or bus home after completing the course on Wednesday afternoon. It was an extremely educational course and gave me many self-advocacy courses and my first real taste of systematic advocacy.
I was given access to the Experts by Experience: Strengthening the Mental Health Voice in Tasmania document produced by Anglicare Tasmania. This is my go-to document, and it changed my life. I already started service mapping in the youth sector in my research for the Youth Interagency. However, this gave me access to 'consumer' services and initiatives in Australia and worldwide. It included ‘Being,’ the peak body for mental health consumers in New South Wales. This document also opened my mind to some ideas of what consumer services and initiatives could look like. I am still looking for a document as comprehensive as this. It continues to shape my worldview. I recommend anyone interested in the consumer movement to summarise this document as a starting point for their exploration for lived experience services and initiatives.
This document and my newfound appreciation for the Consumer Movement saw my research on how to get involved in Consumer Advocacy in my region. I found out that Nepean Blue Mountains Primary Health Network (PHN) was pioneering a new 'consumer' group called the Regional Development Team (RDT).
I went along with the first group and was impressed by its spirit. There was a lot of laughter, mainly from a young Indian Man who seemed to have a knack for making everyone laugh. There were also other people in the group that I gravitated to immediately, including the staff, who seemed content in giving us, 'consumers,' lots of opportunities. Little did I know that this group of 'consumers' and staff would soon become my best friends and inspire me more than anyone else. There seemed to be high spirits amongst the group to bring the consumer movement to life in the region.
Out of this group came two other opportunities. The Nepean Blue Mountains Local Health District (NBMLHD) was also trialling a new consumer group called the Consumer and Carer Advisory Group, or CACAC. Of particular importance was the focus of this group on getting the 'peer workforce' off the ground and getting consumer and carer frameworks to become part of the hospital's wide frameworks. In addition, they aimed to ensure that the lived experience voice was being institutionalised into the hospital's policies and procedures to ensure that the work being done would stay in the systems running the hospital.
The other was involvement in the Saint John of God Consumer Partnership Advisory Committee (CPAC). This was a committee at the local private hospital that met monthly to talk to patients about their experiences at their hospital. If there were any grievances, we would write them down in a red book and read the feedback at a meeting that included administrative, maintenance, and executive staff. This meant that the voice of the patients was relayed to the staff, which could make a difference at the hospital. It also gave me access to an inspirational leader who was chairing the committee, Lloyd. It meant that I got to rub heads with the people making changes at the hospital. I became good friends with the CEO, Steven, who was doing an excellent job at the hospital then.
So, within a few months, I was busy with these three committees, the CBOA, the interagency, and forums that I had to report back to the CBOA. I soon joined the Hawkesbury Skills and Richmond Community Services boards. I was also the Deputy Vice President of the North Richmond Cricket Club. Although this role was virtually void of responsibility in those days, I attended all the meetings and learnt a lot from the other men on the committee. Men that I continue to look up to today.
I also began volunteering at Richmond Community Services two days per week. I often completed the work I needed to do in a voluntary role quickly, so I spent the last four or five hours of the day combining the ideas. This greatly annoyed the boss, but I loved it as it gave me a positive environment to flesh out my ideas.
One of the Community Board of Advice (CBOA) community members begun doing community forums at all the major community groups in Hawkesbury. I often completed the four-question survey, which surprisingly got a lot of discussion out of the groups and meant that we got some excellent feedback for the hospital about what is working and what the community perceives could work better. I put together a report that I got no recognition for. Another member used the foundations of my work and added a few extra paragraphs to claim the work as their own. Regardless, I used the framework for my research at Richmond Community Services. I presented the results at their Annual General Meeting. People were impressed with the level of research that a volunteer was willing to put together for the community.
At the end of all my experience on the committees, I had built a reputation. I was asked if I would be the consumer representative on the Navigation Tool. The committee included a web developer from Thomas Marsden, a psychologist, a carer representative, a project manager, and me, the consumer representative. The Navigation Tool was to be the go-to tool to have on every GP's desk, to give an overview of all the region's mental health and related services. The experts assigned to bring together the task were-skilled, qualified, and experienced.
At the first meeting, I brought the Terms of Reference home. I summarised all the key points that the project was hoping to highlight and the discussions that took place, sort of like a secretary's report. Little did I know this would summarise the website's design. It highlighted all the information that needed to be gathered and gave a rough overview of the people the website would need to target.
I was coaching my second Bob Browns Cricket Coaching tour at Maitland when I got a call that changed my life. The Project Manager, Glenda, was impressed with the work and wanted me to be employed for five months to research and assemble the Navigation Tool website. The Primary Health Network would pay me fifty dollars per hour, and I could keep my pension because they would only employ me for 15 hours per week. I almost jumped through the roof with excitement. I had been at the university and now volunteering for nearly 10 years. Finally, I was given a paid opportunity to be rewarded for all my work. Despite this, I had many ideas running through my brain on how the website could work. I was so excited. I was looking forward to making my way into the mainstream workforce.
The Nav Tool
I arrived at the Nepean Blue Mountains Primary Health Network office early, ready to start my first real job. The building was a state-of-the-art green building at the time, on a corner of the Western Sydney University Werrington campus on the Great Western Highway. First, I walked into a bustling office where I was introduced to the team. Then, I walked to my desk—my first work desk. I was filled with excitement. I was impressed by the modest office space because it was a 'sit-stand desk.'
It was only a short time until I was introduced to the work, and I started getting information together. I began with a thorough internet study of all the directories in the Nepean Blue Mountains. I explored Aboriginal, CALD, Homecare, and primitive disability directories. Much work had been done, but I needed to decipher what was up-to-date, relevant, and outdated. As I sifted through the services in the directories, I slowly worked out where the duplications were and put them into various categories.
At the first meeting with the working group, I had done much research and was brimming with ideas. Whenever I seemed to bring an idea to the table, however, it seemed to get shot down by Glenda, the Project Manager. She seemed to be such a bitch! Everything that I thought was a clever idea, she squashed. After a while, I started to see the method behind her madness, for if every one of my ideas had gone ahead, the project would have taken 30 years. She was sifting through my ideas to see what was manageable.
Some of the ideas that did come to fruition included a section on ‘What to Do in an Emergency,’ organising Clinical Signs and Symptoms into feelings that someone with a mental health issue may experience, a Directory of mental health services, demonstrating ways to access mental health services, mapping consumer networks, and having a resource section. Remmy, the psychologist, went back to the drawing board to research Clinical Signs and Symptoms and how they related to feelings, and I researched the rest. The web developer, Shamus, put together the logistics of how all this would be accessible as a website.
I spent the next few months researching mental health services and applying what I learned about the Consumer Movement and the mental health sector. Then, about three months into the project, I presented what I had done to the Working Group. The feedback was that work still needed to be done because it had yet to reach the website. I had, however, done all the research, and it was sitting on my computer, ready to go onto the website. I was slowly ringing all the organisations to see if the information I entered was correct. Because of the negative response, I was gutted and felt deflated.
Glenda had seen all the magnificent work that I was doing and found a way to boost my confidence again. I continued working my ass off to get a product to implementation. We slowly found a way to get the information in an accessible format. Glenda rearranged the directory categories to make it easy to search. With a few minor tweaks to all the different components, before long, we had a product of which we were proud.
The team came together to edit the website. We were all hands-on deck, working together to ensure no errors. We were working on several projects all at once, including the Resource Cards and the Mental Health Research Libraries. We all came together and edited those, too. It was a real team project.
Thomas Marsden and the Primary Health Network Marketing team came together to produce a marketing strategy, ensuring that the Nav Tool, as we were now calling it, would be delivered to as many primary health network stakeholders as possible. First, Thomas Marsden put out a few distinctive designs for posters and brochures, and we all decided on the ones we liked best. Next, the Team Leader sat down with me and showed me how we put analytics on the website to track its progress and how many people it reached. We now had a formidable product ready for market.
I was asked to launch the product at an NSW Commission event at Springwood Theatre. We had a spacious room to fill, but we managed it. All the advocates I worked closely with over the last three years were there. The local members and many important delegates from the Mental Health Commission were there. Most importantly, a proud Farter made the journey up from Kurrajong to support me. The event went off without a hitch, and the product was launched.
I closed my office in the following weeks and thought about my next move. I began talking to various community organisations that had seen the work I had been doing in the community and at the Primary Health Network. One of them, Oldman, came into the office and told me about a role that had opened in Richmond for a Partners in Recovery program.
Partners in Recovery was a program I had been made aware of a few years earlier at a forum. The manager had been working with me at the Primary Health Network and asked me how I would work with a caseload of about 20 people. I did not know how because it was different from anything else I had done before, but I was confident I could manage it. She, too, was confident, so she enrolled me to begin a full-time role in the Partners in Recovery. I was excited. I had now landed my first full-time role.
Partners in Recovery
I was nervous about starting my new role, my first full-time position. However, it was only about a four- or five-minute walk from my house to a small house converted into an office. There were two rooms with computers in them, a kitchen, and a toilet. In addition, we had two cars available for us to use to see the participants.
I settled into the role with some onboarding and learning all about Partners in Recovery. It was going to be great. I would conduct assessments known as the World Health Organisation Disability Assessment Schedule (WHODAS 2.0) to determine where the participants were in all areas of their lives. I would also conduct a Risk Assessment that went through all the areas of their mental and physical health that could impact their ability to function and assist them with whatever areas of their lives they needed support with. So, it was going to be great.
So, Oldman took it upon himself to train me with the skills I needed to go out and do the job on my own. To be honest, we went all around the Hawkesbury and Nepean talking crack. We would go to the participants’ houses and get to know them and their needs. Then, we would go back to the office, and I would do the research necessary to support them in their lives. I slowly took over and talked more while Oldman took a supporting role.
One day, when we were out with the Partners in Recovery District Coordinator, Naveen, having a good chat after we had finished with a participant, I was particularly heightened because we were mucking around. I joked about Oldman's Big White Pills awaiting him when he returned to the office. When we returned to the office, Oldman brought me into his office and gave me an official warning. I thought I was only mucking around, but it was an immature comment, especially in front of one of the district coordinators.
I continued with the job and was getting increasingly involved with my participants. I was doing a few of my participants on my own now and was only being supported by other workers with extremely difficult participants. I forget the circumstances, but I received my second warning in another heightened state.
On a particular day, one of the new workers, Khrishe, received a call from a participant who was in a psychotic state. He was having visual hallucinations and was seeing things that were not there. Khrishe was trying to find where the participant was so that we could get him the support he required. However, whenever she would get close to finding out where he was, he would hang up or completely change his location. This went on for hours, and I was in a heightened state. I made highly inappropriate comments to some workers, thinking we were mucking around, but no one was laughing.
The following day, I arrived at work, and no one was there. I was brought straight up into Youngman Oldman's office. He explained that one of the workers had complained about some of the comments that were made, which had breached my third warning. It was Thursday, so the Human Relations worker would be coming in on Monday to discuss my employment contract.
I had an extremely anxious weekend and rocked up to the office on Monday morning. I was extremely paranoid. Mother Dearest and Farter drove down to support me, but I needed to do this alone. I walked into the room and was highly intimidated to see one of the Regional Managers and Humans Relations managers staring at me as I walked in. As I had studied termination processes at TAFE, I knew the drill, so I said, 'I know how this works. Without mucking me around, could we please get straight to the point?' They got straight to the point, 'Unfortunately, we have decided to terminate your contract. You are still in your probationary period, and we are afraid that your behaviour is a risk to our company's reputation.'
I lost it and ran out of the room upset. I walked across the road without even looking at incoming traffic. Cars were beeping everywhere, but I did not care. I walked over to the shop and grabbed a coffee. Then I went to grab my car to get out of there. Just as I got to the car, I watched a woman reverse straight into the taillights of my Mitsubishi Magna. Things were going from bad to worse. I had lost my job, and now my car would be out of action and needed to be fixed.
The Global Now Project
The weeks that followed were full of depression and gloom. I was again unemployed. I soon went back to volunteering at Richmond Community Services and continued my work in mental health advocacy, which had not stopped even while working full-time. I committed even more to my volunteer work and ensuring that I was being trained in as many areas as I could. I booked a trip to Peru and planned to stay over there until I ran out of money with the aim of then committing suicide before returning so that I did not have to live my life of gloom anymore.
I began attending Westclub, a social and recreational club over at Penrith. Over there, I was working with a man called Poole. I was brainstorming a 'community literacy' program to build on the awareness of services that the Nav Tool had begun but undertook an expanded program at a 'global' level. I mapped the services locally, and now I wanted to use the skills I had learnt in International Public Health and undertake a global project.
I had started doing an online course on project management through TAFE, and I needed to do an assignment putting together a scoping study outlining the project's idea. So, I got a group of six mental health consumers together for the project and brainstormed the ideas on which I was working. I titled the scoping study - A Global Mental Health Situational Analysis Initiative. The Preliminary Scope Statement explained that the project would be:
"A global open-source initiative that aims to map the programs, services, initiatives, resources, literature, research, and stakeholders currently operating in the mental health sector at a state, national and global level."
The study described the project's purpose, values, aims, requirements, assumptions, constraints, boundaries, risks, deliverables, and milestones. The rest talks about the stakeholders involved, the budget, and principles associated with project controls, control management, documentation, and reporting. This foundational document was highly comprehensive and explored the basic preconditions for starting the project.
I got quiet and sourced a quote from Thomas Marsden to begin building preliminary service mapping software for the project called, The Global Mental Health Situational Analysis Initiative. The initial software was merely a database of programs with backend access and preliminary word processing capabilities. I was required to type all the descriptions of the organisations into the database and hyperlink the programs. It was primitive and messy and had minimal functionalities.
As time went on, I began to invest more in the software. All my spare money was invested in the project. First, I added a Program tab to the project and a way to hyperlink contact, social media details, activities and events, opportunities, and resource details into the software. Then I got quotes for the resource clearinghouse, the stakeholder registers, and the research clearinghouse. After a while, I had comprehensive software of which I was proud. I feverishly spent all my spare time doing the data entry.
One evening, I was reading a book by Wayne Dwyer on mindfulness. Everything talked about the present moment and how we must try living in the ‘now.’ Now, this. Now that. Something clicked in me. My project was aimed at the global level and was mapping what was happening then. The Global Mental Health Situational Analysis Initiative was longwinded. The Global Now Project was a lot catchier. And it talked to me. It was a revelation to me that this should be the name of my project: The Global Now Project.
While working at Uniting, I often came home and did data entry for the Global Now Project. So, I would often be at the Perfect Companions House typing away on my Global Now Project. Not initially, but as I became more ambitious to complete the project and worked full time, this was the only time I had to do my data entry.
In mid-2021, I was invited to talk at the International Mental Health Conference on the Gold Coast. I aimed to make this a networking event to promote the Global Now Project. Ethan supported me in putting together business packages, including business cards, brochures, flyers, and pamphlets for the event. I spent hundreds of dollars. However, due to Covid-19, the event was cancelled and placed online.
I went to plan B and the gig economy marketplace Upwork to find a worker to help promote the project. I found an amazing young woman from Ethiopia, Oluchi, who believed she could get a business on board. Oluchi put hours into trying to get a pitch together; however, she struggled to understand the project and was promoting a completely different project from the one that I had created. I was chewing through my money fast and had to stop employing Oluchi.
So, I spent January of 2022 putting my ideas in a form that could be understood. Then, I solidified the critical components as follows:
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Organisation and Initiative Database: a directory of mental health organisations, programs, services, and initiatives around the world.
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University Faculties Database: a directory of university departments, faculties, and schools from psychology, psychiatry, and other mental health-related educational disciplines worldwide.
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Resource Clearinghouse: a one-stop-shop for mental health resources around the world.
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Research Clearinghouse: a research repository organised by research questions and themes to ensure that all research is accessible in one convenient location.
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Stakeholder register: a register of mental health consumers, carers, and professionals documenting their roles and how they contribute to the mental health system.
The document also highlighted the stages the project hopes to undertake towards the full rollout, the team that will be required, ways people and organisations can get involved, requirements to promote the product, what the project offers stakeholders, as well as the broader idea of how we can Go Global in a Generation. Going Global in a Generation is a more general concept of how conducting a global situational analysis is a crucial first step in the planning process that is important in dreaming, designing, delivering, and developing an ideal mental health system. The document looked forward to creating a Global Mental Health Agency. This registration body measures, analyses, and tracks the activities and transactions of people and organisations in the mental health sector. The document ended with an index of the project's features, the database categories, details of the databases, and a range of surveys to help analyse the project's progress.
Since creating the document, I have dedicated a lot of time to data entry and getting the information into the system. I dedicated myself full-time before going to Ramsey Clinic but have been busy recovering ever since. I aim to pitch my idea to an investor in the coming months to get a small team together to actualise the plan, as highlighted in the document. With the updates that have been made, I can work with tech experts to create a handy tool for people in the mental health system throughout the world.
Finding My Work Self
While working on the Global Now Project and volunteering in the range of roles I was doing, I was always looking for a job. One day on Seek, I found a role that caught my particular interest. It was a role as a Local Area Coordinator. This sounded right up my alley, so I applied for the role. There was a role going on in Parramatta. I thought I had travelled to Parramatta before for work; there is no reason why I could not do it again. I was fortunate to be offered a position to attend an assessment to decide whether I was eligible to become a Local Area Coordinator.
I was running early on the day I was to attend the Assessment Centre. I jumped on the train at Richmond in anticipation. But when we got to two stops on the journey, there was a delay, and we were all asked to get off the train. We waited an hour and a half until we were told to head back to Richmond. I panicked because I was already fifteen minutes late and still had to travel the hour into Parramatta. I almost resigned to the fact that I would not get the job but decided to stay optimistic and head in.
I arrived at Parramatta an hour and fifteen minutes late, sure that there was no point in trying, but they were running late and had only just started introducing each person. I apologised for being late and was reassured that it would not impact my chances of being selected because it was not my fault.
It was a strange assessment structure in which we were first briefed on the disability sector, the National Disability Insurance Scheme (NDIS), and a little bit about the role and competencies they were looking for. It seemed like a significant role in which a degree of customer service and skills in connecting participants to services were required. I was professionally qualified for the role, as I had experience in all these areas.
As the group interview stage continued, I was carried along by one of the other women who seemed to be bound with confidence. She took me along with her enthusiasm and made me look better than I felt then. The final part of the Assessment Centre was a formal interview and a dummy telephone interview. I did terribly at these two phases of the day, but they reassured me I did an excellent job.
I was surprised, but I was offered the job. It was Friday and was due to start on Monday in Parramatta; however, whilst walking through the Richmond Markets, there was a NAIDOC Week event with a Uniting store. The Nepean Blue Mountains Local Area Coordinator Team was doing some community engagement.
I went and introduced myself and told them I was starting in Parramatta on Monday. The team was excited that I was coming on board, and we had a big chat and told me a little bit about the role and what to expect. The District Manager, whom I call Big Brother, was there. She asked me if I wanted to work at Penrith instead of Parramatta. This was more convenient because it meant I could apply the knowledge I had already acquired working in the Nepean Blue Mountains. So, instead of starting at Parramatta on Monday, I was now starting at Penrith. I was so excited.
So, I began my new role as a Local Area Coordinator. I was introduced to my team leader Luella and was left to my own devices to work out what to do. I was given a copy of the NDIS rules, and that was it. I spent the rest of the week printing documents off the internet to get a better idea of the NDIS. I did not know then that most of these documents could be found in the storeroom. This would have saved a lot of effort.
On the second or third day, the Windsor Team Leader approached me to see if I wanted to come and work at Windsor. Naturally, I grabbed the offer, as this meant that I was only 10 minutes away from home. I would now be working in the Hawkesbury Community, where I already knew many of the community groups and community leaders from my Community Board of Advice days. I also enjoyed some of the cafes around the town and the lunch hot spots I had become acquainted with over the years.
And the team was excellent. They all seemed so knowledgeable, friendly, and willing to help. There was one lady in her mid-30s who took me under her wing. I spent months shadowing her and learning from her punctual, abrupt, yet professional approach. She impressed me with her knowledge of disabilities and direct communication style. She seemed to ask all the right questions and find a way to get the answers she needed with such little effort. However, after two months of working alongside her, I realised I did not know her name. 'I'm Leanne,' she said. 'How in the hell do you not know my name?'
I was soon doing my first meetings, where I had to learn to elicit information from my participants and know everything about them. I had to explore all the areas of their lives and then summarise this information for the planners so that they could make decisions on what funding should be distributed to the participants. When I first started, the NDIS was still in its primitive days, and the processes were still working themselves out. It was initially just about writing an interaction with all the details you collected, and the planners would make the decisions from there. In the beginning, we were just information collectors. It would become a lot more complicated than this.
My first plans did not get impressive results, and I thought I would need more time to get the hang of the role. I remember thinking about quitting immediately, but Leanne said, 'You can either take the easy way out or work your arse off to prove everyone else wrong.' So, I chose the second option, and I am so grateful that I did.
After a while, I started to get the hang of it. I looked up to the 'Plan Build' Team, which consisted of two people who became some of my best friends in the world. They used to sit upstairs, learning the ropes. They used to laugh and joke all day. I used to join them towards the end of the day and join their shenanigans. One later became the Best Companion in the World, and the other was Nicola.
Everyone thought Nicola and I were destined to be with each other. The other people in the office were planning our wedding and had plans for us. We started hanging out outside of work. I got to know her, her sister, and her friends well. We went to Western Sydney Wanderers games and even followed them up to the Central Coast to watch them play the Central Coast Mariners. We made a day with it and got fish and chips on the beach. Soon, Smith was taking me everywhere and teaching me about country music. She invited me along to see Kip Moore and Lee Bryce. She also got me tickets to see Bruno Mars, even though she could not make it, and I went along with one of her friends.
I worked hard to get to know the role by summarising the price guide and began service mapping all the disability-related services. Although I was learning from some of the more senior Local Area Coordinators taking on more leadership roles, I still vomited every morning, not knowing what I was doing daily. Nevertheless, I was getting through each day, not feeling I was achieving the outcome I was after. I was getting more of what I was asking for, but something did not seem right.
After about a year as a Local Area Coordinator at the Windsor office, I was moved to the Penrith office to join the Plan Build Team. This was a new role that was offered to a select few Local Area Coordinators. While there was a small team of plan builders at the Windsor office, the Local Area Coordinator Program wanted to make this a more routine part of the role. The National Disability Insurance Agency was training a small team in Parramatta, and I was one of those who were asked to be trained at Penrith.
This was exciting, and we had a week's training to get acquainted with the process. This was about justifying to the planners why the participants required funding and what line items the Local Area Coordinator recommended the participants require. It is then about adding the necessary funding to the plan so that most of the work is done for the planner. I loved doing plan-building, but it took a while for me to understand what I was doing. Soon, however, I had the highest KPIs in the district and was getting better and better at justifying what I needed.
Things were changing at work. I found my 'work-self' when I changed team leaders. I found a team leader who believed in me. She would hold a team meeting every morning to ensure everyone knew precisely what they were doing. Some people thought she was micromanaging us; however, I enjoyed the structure she was providing. It ensured that I did not throw up every morning because I finally knew what was expected of me and what I was supposed to do daily. And all the hours of training that I had been doing seemed to be finally paying off.
When the Best Boss in the World took over Big Brother, things changed significantly at work due to a significant culture shift. This was highlighted by the fact that Big Brother used to sit in an office and only 'invited' you into the office to tell you something you had done wrong, whereas the Best Boss in the World sat out with us and did not even have an office. Big Brother seemed to focus purely on numbers, to the point where she encouraged you to hand in unfinished work to ensure that you met the KPI requirements. The Best Boss in the World brought in an audit team to ensure that quality was seen as just as important as quantity. Towards the end of Big Brother's time, she instituted TIS, a workflow tool, but this was refined under the Best Boss in the World to ensure that the workflow process was improved dramatically, and it was clear-cut night and day, what we were supposed to do each day.
When the Best Boss in the World took over, it became like a family at work. She introduced a role called LAC on Duty, which was like a receptionist for the Local Area Coordinator Program that used the worker's experience to try and solve as many of the problems confronted at the program's front end. I was well into my relationship with the Best Companion in the World by this time, so it was nice when she got this position, and I was reacquainted with her at work.
The team became more like a family, and I really enjoyed being at work. I would enjoy lunch with a different work colleague every day to break up a day of challenging work. Then, we would go out on Friday nights to have dinner, sometimes a movie, sometimes to the arcade, and always some good dessert. It was a lot of fun.
As I had not taken any leave since I started the role almost three years ago, I was forced to take some leave. I went around NSW with Philby, but whilst I was away, I spent most of the time in libraries completing assignments for a short course on Platform Development. I returned to work even more stressed than when I left, and I never caught up again after that.
For a long time, I was working half of Saturday to prepare for the week and was staying back later and later to keep up. I was then going home to have dinner with the Best Companion in the World, but I was also typing late at night while doing the Global Now Project. I added a few extra short courses to the workload, and before I knew it, I felt burnt out. I was smashed at work and was increasingly stressed in my personal life.
I desperately wanted to leave the NDIS system for a long time and had been looking for a job for over three years. There was no consistency in the National Disability Insurance Scheme (NDIS), and the injustices felt so huge. The tipping point was when I had worked with my favourite participant for three years. We presented the same evidence as we had for the previous two years, with increased evidence, mind you, and the planner decided to cut his plan by $60,000.
The planner justified that the participant only needed 10 hours of social and community support to do everything he needed. Things you and I take for granted, shopping, spending time in the shops, going out with his friends, going to the gym, and even playing wheelchair basketball, with which he had previously represented Australia. He was expected to do all this in 10 hours, all because a planner believed this to be reasonable and necessary. Even though a previous planner had capped his minimal social and community budget for an active young man with spina bifida who cannot access the community without the assistance of a support worker at 26 hours, this planner told me that 10 hours was sufficient. He was expected to do everything he needed in that short period of time.
I was mortified, and then the planner told me that he did not need his meals prepared and delivered, even though he was in a wheelchair and could not reach the counter to prepare meals. The planner tried to tell me that because he has a wife who can prepare his meals, he does not need to do this himself. The participant's wife, however, often worked, which meant he would often be home alone, unable to prepare a meal. It was not just these things. The planner cut out most of the things that the participant needed to live an ordinary life. I tried to advocate for him but ended up getting reported for telling the planner that, 'she had no accountability in making r decisions.' I explained that although it does not impact her, it affects the participant's ability to live an ordinary life. It was not the planner who got yelled at when I told him that his plan had been cut so dramatically and the NDIS would have to pay another Local Area Coordinator and planner for another review.
This was the final straw for me, for this type of story happens all too often. The Local Area Coordinator is the person in the middle who gets yelled at by planners, participants, carers, and even providers whenever the party does not get what they want. The reality is that it is the Local Area Coordinator who is working the buts off day in and day out. Most of them who have been there for more than two or three years are burned out because the demands of the role have become increasingly challenging to sustain. The management is more than happy to increase the demands without knowing what the role requires. It is a problem not just in the Local Area Coordinator role but also for planners and any employee in any position in the NDIA. It is worrying because these are the very people upon whom the NDIS relies for the system to hum along.
One Door Opens
I left Uniting, a job that I had worked my ass to be good at, because I needed a change and had burnt myself out. I was interviewed at Frangipani House in Harris Park to be an intensive NDIS support worker. My role would include working in a centre for people with complex mental health problems on the NDIS. The role included facilitating groups, working one-on-one with difficult clients, and helping run the centre.
The day would begin with a morning meeting where I would work out what I needed to do. There was a rough rotating roster that was prepared by one of the staff members, including a range of duties, such as cooking lunch with the participants, operating on the floor of the centre, ensuring that all the participants were happy and occupied, cleaning up at the end of the day, and running the groups. There were rough categories for the groups, but what you did was up to you. It was my job to run the mental health group a couple of times a week and run the men's group, as I was the only man working there after the first couple of weeks, and I had a few other groups to fill time with.
What I did in these groups was entirely up to me, so I went to work to spend all my spare time working out and getting great content for these groups. I decided to focus on 'change' because this topic often came up when asking what to focus on. 'Thoughts' because these are important for our mental health. I decided to focus a group on 'Chinese Medicine' as this topic I knew a lot about and could be applied to anything. The men's group focused on issues such as 'men's business,' expectations of men in modern society, and a range of statistics on men's mental health that I found interesting. I also did some groups on 'mental health advocacy,' 'the consumer movement,’ and other topics that I had an interest in and focused on mental health.
I loved getting these groups together. I would spend all my train trips home preparing for the following week. Then, I started focusing on the following week's groups. Soon, I had a range of courses on diverse topics for the next couple of months. I loved consolidating much of the knowledge I had been learning over the last 15 years and having an audience to discuss topics I enjoyed exploring. Although it was only a small group of interested participants, they enjoyed my teaching style and the opportunity to discuss exciting topics that were relevant to them. Occasionally, some other colleagues joined in, adding further vibrancy to the discussions.
The floor time allowed getting to know the participants, and the individualised time provided an opportunity to work one-on-one on things that were important to them. I helped Marco design a website for the book he had poured his life and blood into. I listened to some participants and the extensive traumas they had faced that had made them slightly delusional. And I got to know young Andrew, whose struggle with his sleeping patterns made living an ordinary life difficult. Everyone I worked with had something that made them exceptional. I built up quite a lot of momentum with many participants, and what happened? COVID-19 happened.
COVID-19 sent me into a shock wave. I enjoyed waking up early to catch the train to Harris Park. I never missed the early train, which meant I was getting to work about 45 minutes before work started so I could settle myself and prepare for the day. I loved the routine of being around the participants, helping them cook lunch from time to time, enjoying the food and the vibrant Indian community of Harris Park, enjoying the company of my work colleagues, and getting all my work done on the way home on the train. I was enjoying the routine and the work I was doing.
The COVID-19 pandemic meant the centre was closed, and all contact with the participants went online. All one-to-one support were done over the phone. I was skeptical of how this could work for people with mental health problems, but I tried to make it work. I put together a schedule of all the participants I had assigned and scheduled a time to ring them once per week. I scheduled the online groups we were to do and researched a range of games we could play, trivia games to explore, and content I could use for my online groups. It was fun trying to be creative.
I scheduled to talk to each participant for one hour but was uncertain what sort of conversation I could have with mentally ill people and how this could go for an hour, but I was optimistic. In the spare time in between, I tried to get together a range of courses on the topics I already started in the groups and expanded on a wellness course that covered all aspects of wellness—gut health, diet, heart health, sleep, etc. These were topics I had read a lot about, studied for years, and was hoping to consolidate anyway for my own wellbeing.
It turned out to be great. In the beginning, it was tough making conversation, and it seemed like no one usually answered. Poor Shinella got frustrated as I called her one phone call after the next, but the participants opened. Talking for an hour was sometimes not enough, and I said we would continue the discussion next time. Some of the participants asked for more than one discussion a week. We would talk about all sorts of things. Some participants just wanted to talk and were otherwise isolated because of the pandemic. Other participants wanted to work on capacity-building skills and were grateful for my putting so much time into my presentations and discussion points.
And I had my regular group attendees, which made the online groups one of the most rewarding experiences of my life. We had all sorts of groups and all sorts of discussions. I had Heidi, a sweet young lady, who could not work during the pandemic, so she joined every group we did. Noel was a thoughtful and intelligent man who participated in most groups. Paul, who had been hospitalised most of his life, shared his wisdom through his long, thoughtful sentences that seemed to blur one from the next. There were a few others, but these were the core that joined the group every time. I got extremely close to them throughout the sessions and looked forward to seeing what I could learn from them.
One session with Barry was extremely memorable. I had been working with him for three months when we decided to explore his family history. He was a quiet man, but he could talk once he got started. I managed to get Mother Dearest on the phone. She is a family history expert and was more than happy to help. She asked Barry questions and discovered that he was related to Reg Livermore, the genius songwriter and producer who wrote the Rocky Horror Show. Mother Dearest then returned and did Barry's whole family tree right back to his convict routes. She did it for free. And Barry was wrapped in hope that he could put together a few more pieces into his family's story.
I thoroughly enjoyed my chats with the participants, but centre-based care was invalid in COVID times. Being a small non-government organization (NGO), One Door Mental Health could only justify employing some of the employees in their current roles considering how uncertain the times were. There was, however, another position available in the Connector Program. This program tried adjusting to working online but had a few more opportunities than at Frangipani House. I was offered a secondment to work in the Connector Program. I jumped at the offer, thinking that this would be an excellent strategic move for my career, and quickly jumped on board with my new program, which would be more of a support coordinator role, like the work I did with Partners in Recovery.
Connector
I soon jumped over to my new team, composed of three fine individuals. Glen was a skinny man with experience working in Partners in Recovery—Mental Health (PHaMS) out of the country and had previously been an advocate as a pioneer of the Hearing Voices Movement. Daniel was a fine young man, working four days per week. He was well travelled, he was in his last year studying social work at the university and had a good grasp of the social determinants of health. Ruth was a dark woman from Kenya who was previously a personal trainer, and full of enthusiasm. Unfortunately, they had been smashed with work, and the early parts of the Connector Program had meant a considerable waiting list.
The program was structured through one-on-one support, helping in all areas of the participants’ lives. I did a presentation of all the things that were expected of me in the role and quickly learned the structure of my administrative requirements. Still heavy in the swing of COVID-19, I was given a caseload of 10 to start with.
I got to meet my participants on the first or second day. Some answered the phone, and I went through my spill, but many did not. We had a long waiting list, so it was not the end of the world if people did not want to engage. So, I worked out who on my list needed support and who had been told by someone else they should be on the program. Before long, I had a small group of participants requiring regular support. Some needed help with housing, and some needed someone to talk to. Regardless, I was seasoned with talking on the phone by now, and the days seemed to go by so quickly. I was on the phone most of the day and spent the rest of the day researching ways to improve various areas of their lives. Knowing things would be busy when we returned face-to-face, Glen was concerned that I was biting off more than I could chew. He was worried that I was trying to support too many participants.
We eventually did return to face-to-face, which meant an hour-and-a bit of commute into the Grose Street Office in Parramatta. I visited participants face-to-face at their homes around Western Sydney, which meant a lot of driving. The only real expectation of being in Parramatta was the Thursday morning walking group, which was great. Everybody came for their coffee. Some walked. Some just talked. But we soon had an excellent atmosphere.
Everything was going smoothly. Daniel and I decided that we would share our first visits. So, one week, we went around town meeting all my participants, while the succeeding week, I spent time meeting his participants. We thought this was a good approach, as it would mean that if one of us was sick or on a holiday, they could be supported by the other. We got to know each other in these weeks, and many of the participants we met during this period became highly involved and engaged in the program.
One visit was entertaining. I did a lot of work on the phone with John, including getting him 'Emergency Payments' through the Salvation Army when he moved into his new house by having a three-way conversation over the phone. So, I knew a lot about John, and he knew a lot about me, but I had yet to see what he looked like.
I met him at the 7-Eleven in Paramatta and asked a man if he was John. He said, 'Yes, I'm John.' So, I went on and bought him a cup of coffee. We then continued chatting about everything we had been working on over the phone and talked about Adelaide. John spent most of his life in Adelaide, but this ‘John’ had no idea about anything to do with Adelaide. He continued but became so disturbed by the conversation that he left us. Realising this was not the 'real John,' we returned to the 7-Eleven, where a man came running up to me and shook my hand. It was great to finally meet John, and this was the start of an enjoyable work relationship with him.
As the program progressed, I decided to make the most of the big project budget left over from pandemic. Because we did not spend any funding during this period, we had a lot to spend. It would be wasted in the following year if we did not spend it, so I proposed a more in-depth program for the team. Initially, they were skeptical and thought it would take away from the individualised work, but I convinced them that it could work. So, they jumped on board, and the Connector Program came to life.
Mondays became guest speaker days. This was an opportunity to talk to Peer Work and Mental Health leaders. I got guest speakers like Maree Abunga from Cameroon, my mate and Peer Work leader Ryan D'Lima, the earlier Mental Health Advocate of the Year Matthew Jackman, global peer work leadership pioneer Marie O'Hagan, Australian Peer Work leader Fay Jackson, and lots more. Although the numbers and enthusiasm dwindled when I interviewed my heroes, Glenda Webb and Charlene Sunkel, we gave many opportunities for our participants to hear from, meet, and ask questions of some of the leaders in the mental health field. While I led most of the sessions, sometimes my peers took over, preparing and sharing the questions with the leaders before doing the question and answer (Q&A) sessions.
Tuesdays were our outing days. This allowed our participants to explore places around Sydney, like The Three Sisters, Cockatoo Island, the Botanical Gardens, the museum, Manly Beach, Fagan Park, Taronga, The Rocks, and many more. When we went to Cockatoo Island, we had a big picnic for our new worker Fatima's birthday and explored the historical navy site. When we went to Manly Beach, we caught the train to Circular Quay, the ferry across to Manly, and had delightful fish and chips on the beach. We then split into two groups: one group walking along the beach and foreshore, and the other through Manly's mall and op shops. These days were full of fun and adventure and gave a fantastic opportunity for the participants to get to know us and each other. For many, even having an ice cream, a picnic, or other luxuries our budget could afford, was a novel experience for them and gave them a sense of connection to others.
We also did fun activities such as barefoot bowling and 10-pin bowling that gave the participants other outlets to enjoy themselves. Costs were minimal, as they were mostly covered in One Door's budget, other than the costs for the trains and buses to get there. There were often reduced prices because Daniel had often bargained with the service providers to ensure no or little cost. Daniel did an excellent job preparing for these outings and ensuring these days were fun, well organised, and despite being informal, filled with joy, so everybody could get something out of them. These were fun days but also educational for the participants.
Wednesday was BBQ Day. Initially, we had BBQs at Bungarribee before moving them to Blacktown Showground. Whilst the first group felt different enthusiasm than I did when I tried to encourage them to participate in games like cricket, we had a stable group of participants turn up each Wednesday when we transferred the group to the Blacktown Showground. We began playing card games that then transformed into longer walks around the Showground. Glen or I would quickly stop at Aldi on the way to the picnic to ensure there was enough food for everyone. At the picnic ground, everyone seemed to enjoy each other's company. For many, the decent meal was their most significant meal of the week, possibly even their only meal beyond a few boiled potatoes and eggs. Unfortunately, many were struggling with severe mental health challenges, so it was often difficult to give them enough motivation to cook a healthy meal.
Thursday was a chance for the participants to meet up in Parramatta Park for coffee, milkshake, or drink of their choice. Whilst the group's purpose was initially to go for a walk around the park, it became more of a chance to chat and get to know each other. Whilst some participants chose to walk around Parramatta Park, most preferred to exercise their conversation skills. This group climaxed with about 16 participants at one point, when two tables were not enough for everybody together without spilling out into the main part of the café. At one point, almost the whole café was full of One Door participants. By the end of the group, the numbers slowly dwindled, and there was barely any participant remaining.
As the Thursday morning group dwindled, we found that many people could not make a face-to-face group meet-ups due to a range of issues. One was social anxiety, in which people lacked the confidence and social skills to make face-to-face groups beneficial. Other people had agoraphobia and found it difficult to venture out of their homes. Others were still in lockdown mode and had not regained the confidence to venture into the community again. They had lost their confidence. We decided to start running online groups to reach these people.
Initially, the group thrived. The first two groups brought many of Daniel's participants online, sharing in different ways. We tried to get one of Daniel's participants to share her story. However, this was rather long and scared some other participants away from the online groups. Finally, after a few months, there were two regulars, Sharon, and Bill.
Sharon was experiencing agoraphobia and had rarely ventured out of her home in 20 years. We had gone out to visit her at home, but she felt more confident online. Bill had turned up to several of our groups but struggled with social anxiety. We all connected with both, so the online groups were extremely enjoyable. We played Kahoot! most of the time and loved these trivia sessions. Sometimes it ventured into other online games, but there was a lot of laughter regardless of what game we played. Whilst it was hard to justify funding for two people, the social connection it gave them was worth every penny One Door was investing in them. Right up until our last session, Bill gave us his last drum roll. It never seemed to matter who won or lost. It seemed like we were all winners.
Friday was our activity day. I would come into the office after seeing one of my participants and often arrive at Fatima with one of the participants doing art with one of the workers. As a few more participants would come, I would take them down to the shopping centre to get the ingredients for lunch. I would then get a production line of participants chopping, cutting, mixing, grating, peeling, and preparing the ingredients. Finally, a whole group of participants would help me prepare and cook a delicious lunch before enjoying eating it together in the courtyard. The participants would often stay for a few hours, enjoying each other's company, before we finished up for the weekend, or I went to another participant.
While I prioritised the program that we had created and the group activities, I also worked with 15 other participants. I helped them with housing applications, NDIS applications, going for a walk to have a break from their daily routines, or just talking to them on the phone if needed.
Zoe (pronounced Zo) was one of the participants who took full advantage of the program. She struggled with anxiety and depression most of her life, and her mobility was limited. She did not know why walking was getting more challenging, but her doctor, Doctor Nikki, saw a brochure of Connector and thought it might be a good thing for her to try.
Zoe was not happy with her initial worker, Ruth, so she asked if I could take over as her worker. I met her at one of the Parramatta Park walking Thursday mornings when Ruth picked her up from Seven Hills, and we hit it off straight away. Soon, I was conducting capacity-building workshops with her on gut health before a regular Friday morning spot opened. Zoe became involved in the outings, came to nearly every BBQ, and tried to make as many Friday activity days as possible. So, she was making the most of the program.
Our Friday morning sessions were regular at 9:30 a.m. at Seven Hills Shopping Centre. I would arrive early to get some of my other work done and buy her coffee on her arrival. Sometimes I bought her breakfast, as that was a luxury she could not afford. We did everything in these sessions, including her housing application, her NDIS application, a functional assessment for the NDIS, finding her a trauma counsellor who changed her life, and even spending a few weeks preparing a submission to the Deputy Housing Minister, who was going to be one of our guest speakers. Zoe found herself in her program. On the last Friday Activity Day, I caught Zoe saying, 'This is my family.' Zoe has since stayed friends and continuously told me that through One Door, 'she found her tribe.'
John was sometimes a loose cannon, but I got to know him well throughout the COVID time. John had been through several foster homes throughout his life and never got to know his family. When I first contacted him when I first came on board with Connector, he had just moved into his first home after being homeless since arriving in Sydney. He had moved across from Adelaide to start a new life. He had nothing except a fridge and a few nick-knacks, so I helped him get a few appliances through the Salvation Army's 'Emergency Fund.'
After our adventurous meeting, I helped him move into a boarding house in Guildford. As he was new to the area, I would walk around the neighbourhood with him to help him feel safer in his community. John had borderline personality disorder from all the trauma and neglect he had experienced in his life. He would often talk, and I would listen. He often said, 'Not many people get me, but you really get me.'
Unfortunately, I could not be there twice for John when he did need me. The first time he had had an altercation, he had shown up at the Grose Street Office, hoping I would be there. Unfortunately, I was not there, and he had called the police, who took him to Cumberland Hospital. The second time, he had a bit of a psychotic episode and desperately needed to talk to me. I wanted to meet him halfway. Unfortunately, it had been raining for weeks, and I was working from home because I was flooded in. There was no way for me to go anywhere because the train line and the roads were blocked. John spent about six weeks in the hospital then and was fortunate to get released.
I visited him two or three times per week whilst he was in the hospital. By the time of his release, John had had enough of Sydney and hoped to head home to Adelaide. However, he wanted to avoid returning to the Guildford guesthouse because he felt unsafe and needed somewhere else in Sydney to stay. He promised me he had somewhere to stay in Adelaide, so I spent weeks helping him get his birth certificate. This was challenging because we needed somewhere to send it, but eventually, we got it. I then helped John organise a flight home to his homeland and helped him get on the plane. I almost cried when he finally got on the plane because we had been on quite the journey together.
Jeff was a Sri Lankan-born web developer who had been struggling with bipolar disorder for many years. He had a good sense of humour, and we had much in common. We had a range of adventures together, including playing badminton, having boxing sessions, grabbing our regular coffee at McDonald’s, going to the Lindt factory, exploring a Sri Lankan supermarket, and going on a few random drives. Sometimes we would work on Centrelink applications, but most of the time, we would chat about random things. We would talk a little bit about mental health, a little bit about his family situations, and a little bit about his experiences in the tech world.
Jeff had had some difficult experiences with his bipolar disorder, including trying to top himself with a tie when he was at St. John of God. At times, Jess called me in crisis; however, because of his history with the public and private mental health systems, I had to try other approaches when he was suicidal. He did not need me to call an ambulance, but I often suggested ideas like text crisis lines. This would allow Jeff to think about his responses instead of just reacting. He would have called me three or four times in an emergency, and we always found an alternative solution. The reality is that I like Jeff, and although he had a pretty shitty father, he was a rather good bloke.
Donna was an agoraphobic who had barely been out of her home for the last 20 years. She was morbidly obese but did her best to lose weight and perform a regular workout routine. I began working with Donna during COVID over the phone and continued working with her until my last day at One Door. In our time together, I only visited her twice; the rest were our weekly one-hour conversations over the phone.
The first time I visited her at her home, her daughter was there with her support worker and her challenged grandchildren. As I knew Donna loved affirmations, we took turns for each person in the room to find an affirmation on their phone or computer, one they had already thought of themselves. I collaborated on all these affirmations in a presentation that is very dear to me. I later gave Donna a book by Donna Hay, famous for writing amazing affirmations. Donna read it cover to cover, and this was often one of many discussion points in our chats. Donna spoke sternly to the executive when I lost my position at One Door because our sessions made a big difference in her life.
Like John, Sribimo was a troubled participant who was a bit of a pest to some of the other programs. To me, he was an absolute gentleman. Daniel and I visited him in his home, and he spoiled us with Lebanese treats. He was in a break-and-enter situation when he was high on Xanax, and I accompanied him to a range of court proceedings. We put together a presentation of all the happenings in his life. This was enough to get him out of prison and continue living with his family, whom he was trying to look after. He turned his life around, and found a decent job, and I was able to get him out of the program. I called him every now and then to see how he was going, but his mental health was under control.
Arren was the success story of the program. He was not engaging with Daniel, so I gave him one last shot. We met at Blacktown Shopping Centre and sat down, where he told me about his schizophrenia. Arren was able to describe his symptoms and experiences vividly. I was impressed. He came from the Philippines to care for his father, who was dying of cancer. He was living on boiled potatoes, boiled eggs, and not much else. He began coming to all the outings and all the BBQs and helping me cook lunch on Friday afternoons. He participated as much as he could and started making wonderful friends. It was such a joy to see his confidence grow as he developed his life skills and his social skills.
One day, our Executive Manager came into the Grose Street office at about 2:00 p.m. He was expecting things to be winding down and for us to prepare for the weekend, like he was willing to do from Tuesday onward. But the place was buzzing. We had a small handful of people in the kitchen cooking lunch and another group enjoying each other's company in the courtyard.
At that point, we were proud of how the program was going and expected our contracts to be extended for at least another three years. In addition, we were training three new employees to be part of the team. Finally, we were expecting the other program that was running, the Service Navigation Program, to be combined to create a unified Psychosocial Services Program (PSP).
The reality was that we only got half of the contract. What was going to be 12 positions became six. We were all asked to apply for our positions, knowing that six of us would not get them. I applied for my position and was unsuccessful. I was offered redundancy and told I had two weeks left in the position. A position that I loved. A program we had created from scratch. A program anyone would be proud of. To the Executive Manager, we were not getting the KPIs he wanted by doing useless K-10s that show no real measure of whether a service is achieving its aims. We were getting results. We were changing lives. People were enjoying themselves and learning valuable life skills. That should be the objective measure that determines whether a service is meeting its objectives.
Our last day of Daniels' time at One Door was buzzing. As usual, we had 15 or 16 people in the centre, who put on a magnificent show. We had a wonderful time and enjoyed singing happy birthday to him before giving him his card and gifts. We spent a momentous day in the courtyard, having a wonderful time and enjoying everyone's company one last time. The company that had found 'Zoe's tribe,' and gave Arren a new lease on life.
Daniel and Glenn also took redundancies, as Daniel was already leaving for six months to pursue his Social Worker Placement in Alice Springs. Glen was uncertain what he would do with his life, as the position had burnt him out long before I came on board. I, too, was left on the drawing board, thinking about what I was going to do next. I was again in a hole, not knowing what I had done wrong and thinking I was again making a difference. Only to be left unemployed again.
One Door Closes
I hit a deep hole when I lost my job at One Door. When I left Uniting, I left a job I had worked my ass off to be good at. I left Uniting to explore an area of employment in which I considered an expert. I was an expert. I talked to experts. And we made an excellent program, mainly based on my vision of an ideal mental health program. I felt defeated. I tried to fit in repeatedly, and my mental health continued to get in the way.
I do not blame the management for any misfortunes I have confronted in my work life. I would have made the same decisions with the information they had. When working with Partners in Recovery, I demonstrated some inappropriate behaviours, made offensive comments, and struggled to maintain a positive level of mental health at work. When I was disciplined for inappropriate behaviour comments at Uniting, I demonstrated poor professional conduct in the workplace. It was not my fault that the NDIS and COVID killed centre-based care. But to lose my job at Connector, where I significantly impacted people's lives, hurt.
And I was supposed to walk away from the positive connections I had made. I had invested a lot of emotional energy into ensuring that their well-being was being looked after. I made them feel safe to discuss the traumas that left them in despair. Again, I do not blame the executive manager for looking for alternative employment arrangements because contractual agreements are essential, but surely making a difference should be placed above objective measures that do not mean much. Surely developing life skills and improving the areas of people's lives that matter is more important than petty KPIs like completing K-10s. Even then, I was up to date with these as well. Because I was again unemployed and uncertain of what my future would hold, I went deeper and deeper into despair. I felt defeated. I felt cheated and abused by a system that seemed not to care about what was important. Quality of life. People. Meaningful connection. Healing together and being each other's partners in recovery.
I spent much time at the Perfect Companion's house all day, staying for dinner and miserably watching TV, which relieved me so much. Because I was so low, she called her friend, Catherine, one day while we watched TV on the couch. Catherine offered me a job with her disability support coordination company, Costello Consultancy, saying that all I had to do was make a difference in people's lives. She said the job would be two-fold—I would be a 'Psychosocial Recovery Coach,’ and I had to create a social program for her disability participants. In addition, it would be my role to work with all the participants to support them in whatever areas of their lives they needed assistance with.
At that point, I was offered another interview with Flourish Australia for the Resolve program. My previous project manager, Glenda, run this program for several years, and I knew the program well. It had a good reputation for reintegrating people with mental illnesses back into the community after an extended stay at the hospital, which lasted more than 15 months. The management sounded lovely, but I was scared because I had the night shift involved. I previously worked on the night shift while working at a petrol station, which destroyed my mental health. So, I was a little bit skeptical about taking this role. So, when the job at Costello Consultancy came up, I was excited. It sounded like the perfect role.
The Perfect Companion tried to warn me that it might not be as perfect as it seemed. She warned me that Catherine was an over promiser. She previously worked for Catherine in a role that sounded too good to be true. She had left Uniting, a job that she had loved and loved the people she had worked with, to work at Costello Consultancy, thinking that she would have much less work and more time to spend helping Enigma with his therapy. As it turned out, 30 billable hours meant a lot more work, and she worked early every morning. Catherine pleaded with her to come over to work with her for months and then provided no guidance or support when she got into the role. I had seen many of my friends, many from Uniting, worked for Costello Consultancy as well, and none had been able to last more than six months or so. Regardless, Catherine tried to get me across to work with Costello Consultancy for years, was a good friend, and the job sounded too good to be true. Plus, I did not have anything to lose. It was better than sitting on the couch all day feeling miserable.
So, I drove over to the Abel Street office for my first shift. It seemed promising at first. The induction was excellent. Everyone seemed excited to have me on the team. I started with the statistics and worked out the demography of the company and its participants. The first day in the office was buzzing because of a Christmas party. The place was full of people, and the place was humming.
The next day, we met with Catherine, the CEO, and Naomi, the person I would be working with to deliver the program. We sat down, and I asked, 'How will this all work?' Catherine replied, 'I would like you to get some program's up and running.' 'What type of programs would you like me to get up and running?' I asked. 'That will be between you and Naomi.'
That did not give me much to work on, but at least I can be creative and work out a program that might work. After all, it was a self-managing team at One Door, and we were not advised by the management. I thought I could do it all over again.
So, I knew the demography of the participants, and Catherine gave me some of her participants that she would like me to meet, so I put together an expression of interest form of all the activities I researched that were available in the Penrith area. I thought I would go out to some participants and scope their interests.
I went to about 10-12 participants' homes and discovered that they were interested in similar things. Most of them were interested in the available recreational activities, so I started ringing around and visiting the various recreational activities around town. Before long, I had six weeks of programs booked for an Activity Day on a Monday, a Women's Group on a Tuesday, and a Men's Group on a Thursday. This would accompany the Art Therapy group on Wednesday. We would work towards having an outing day on a Friday to places like Featherdale and other sites we found thriving in the Connector program.
While waiting for the program to start, I visited as many participants' homes as possible to see their needs and goals. The aim was for me to work with the support coordinators who were working with these participants to achieve these goals. Although this worked for some participants, it felt like I was encroaching on the role of the support coordinators and that we were doubling up on service to get more money for Costello Consultancy. That was the role of the support coordinators anyway, so it was double dipping.
I was also working with one Recovery Coach participant, Brett. He was a lovely man who loved to talk and have a yarn. He told me that he was not an alcoholic because his liver markers were not at abnormal levels, despite drinking a case of Victoria Bitter at least every two days. He told me he kept a lid on things by drinking slowly, only consuming a stubby every 40 minutes. Regardless, he was a heavy drinker, and his demands increased as the day progressed. He often wrote Catherine long, rambling texts late in the afternoon, making his demands known. He had a lot of respect for Catherine because she secured him the comfortable home.
I would spend quite a lot of time at Brett's house, just listening to him talk. Then, we started walking down to the coffee shop, where he would tell me everything about his life, travels, and many of the things troubling him. Then, I would order him coffee and listen. I had a soft spot for Brett, and I think he had a soft spot for me. He just needed someone to talk to, and I enjoyed listening to his stories.
Finally, we got going with the groups. The first Monday group was an exercise group where a personal trainer went through an exercise routine with our participants. We only had about four people turn up, but they all got something out of it. We finished with lunch and then drove everyone home. It was a great start.
The day before the Tuesday Women's Group, the facilitator dropped out because she had COVID-19. So, I called Mother Dearest, who filled in to do the sewing and crouching class. I already had all the needed equipment, so I looked forward to the ladies learning something new. We had six or seven ladies turn up, and they all did their best. Many had support workers accompanying them, who also participated in the activity. It was a fun day for all involved.
The first Men's Group on Thursday was also a success. We had a fantastic trivia day with a few men that turned up. Because the numbers were low, some workers from the Caring part of Costello Consultancy joined in. Caring was the support worker wing of the Costello Consultancy organisation. This made for a memorable day that was full of laughs.
I had a great program up and running, but things drifted on for a few weeks. I met some people at their homes, completed the expression of interest form, and tried to work out how to make the participant's dreams come true. As I seemed to encroach on the work the support coordinators were already doing, I became increasingly stressed. The team seemed more interested in making money than achieving outcomes. They talked behind my back and started to tell me I did not know what I was talking about. I worked for three and a half years at the NDIS and understood the rules, but this did not fit with their values. The other workers seemed so content with keeping their customers that they were not following the rules of the NDIS.
The program hummed with activities like going to Ten Pin Bowling on a Monday, Lewers Art Gallery for the ladies on Tuesday, and the Movies for the men because Lawn Bowling was cancelled. I thought things were going OK, but I was becoming increasingly stressed because I did not know what I was doing and was winging it. I was getting anxious as I ran here, there, and everywhere without being present in whatever I was doing. The numbers participating in the program were below what I expected, and I was not bringing in enough money for the company. Not enough to justify my wages. Although they did not expect me to achieve numbers overnight, there needed to be more funding in the participant's plans to justify expanding the programs. Everybody who was going to participate in the programs was participating. The people who were engaging in it were loving it. I should have been happy with that.
Outside the group, I only had one participant I was working with, and he was becoming increasingly frustrated with me. As the drinks would roll in in the afternoon, he would call me, demanding to find a psychologist. But none was available, and when I did find one, there always seemed to be a reason why they could not fit him in for a few weeks. So, the pressure was increasing on me. And I was feeling it. I felt stressed, anxious, and useless.
After about six weeks of starting at Costello Consultancy, Catherine organised a time for me to meet in the office. Naomi, who was playing the Human Relations, had taken some time to also be in the office. Naomi got straight to the point. 'It's not working out,' she said. Catherine continued, stating, 'You only have one Psychosocial Recovery participant at the moment, and he preferred not working with you any longer. She said, 'He feels that as you are a lived experience Recovery Coach, his trauma is getting the best of you.'
It was true. I had not found my feet in setting up the programs. I lacked structure and guidance on what was required. And although Noami was supposed to support me in setting up the programs, I did it all by myself. I gave her a few tasks to follow up on, and when I came to the next meeting, none had been completed. Because I was stressed that she had not done it, instead of focusing on the budget as I had planned in the meeting, I tried to follow up with what she was supposed to do. There was no support, guidance, training, nor professional development on how I could do my job better. There was no support at Costello Consultancy, and everyone was talking behind everyone's back. There was not a good culture at the company.
Regardless, I had two days left at Costello Consultancy. I went to Brett's house for one final session, and it was one of the best experiences of my life. I finally found a psychologist, and she booked to see him the following Saturday.
When I arrived at his house, I was brimming with excitement that I finally secured a psychologist’s appointment. I said, 'You have someone to talk to now, Brett. You do not have to hold it in anymore.' He stared straight into my eyes, and his eyes started welling up. Finally, he burst out, 'Sixty-five years. I have held it in for 65 years.'
Brett started bawling his eyes out. He had been so desperate to reach out to someone to talk about trauma that he had not told anyone for 65 years. He had kicked another child in the face when he was young, killing him. He did not have the skills to cope with this and instead not told anyone all his life. He told me because he trusted me. He just needed to let it all out. There were a few other things that he told me that day that he had promised to keep to the grave. Expressing his traumas seemed to give him great release. He asked if I could accompany him to the psychologist on Saturday morning. It was the least I could do.
I was furious on my last day at Costello Consultancy. I frustratedly backed up my stuff and packed it in the car. I let Naomi know throughout the day how angry I was. I felt that I had done a rather excellent job with the lack of support I had received. I had created an amazing program that was doing OK and had made headway with one Psychosocial Participant I did have.
I was just about to leave the office to go home when one of the participants showed up. He was brimming with excitement after the movie we saw the day before. We had gone and watched Tom Cruise's Top Gun, and we stayed for a long time after that just chatting with the participants and having a bit of a laugh. As he walked into the office, Naomi said, 'You must be smiling because of the movie you watched yesterday. The participant 'Yes, it was great. Andrew has made a real difference in my life.'
He came to chat, and I ensured Naomi could hear the discussion. He had come in a few times to talk to me, so I knew I had made a difference in his life. As we spoke, I said, 'I've got some bad news.' 'What?' he said. 'Today is my last day at Costello.'
His jaw dropped. He said, 'This always happens to me. As soon as I get close to someone, they leave.' I said, 'Do not take it personally. Things were not working out.' He said, 'I am going to take this personally, they can't do this.'
This was not the first time he had gotten close to someone, and they had left. This is a familiar story for people in the disability sector. There is such high staff turnover because it is hard to make a buck in the industry. So, people come and go, breaking meaningful relationships because it is hard to justify paying someone if they aren't bringing in money. Regardless of how much they care, or whether they are making a difference in people's lives. It appears all too often, and many times in my life, that making a difference is not enough.
I packed my bags and left the Able Street office. I was unemployed again and uncertain where my next dollar would come from. I created a great program with no help from anyone else. But again, that was not enough. Again, I started making connections. But again, that was not enough. Again!!! I felt defeated. Gutted. My heart sank. Again, I tried my best and failed. Again, I tried to fit in. I tried to make a difference. And I was thrown out like trash. I had nothing left.
Despite the best efforts of the One Kind Person working there, I lined up concrete walls on the way home. But I could not muster enough strength to leave my body to smack straight into the brick-and-mortar. I lined the wheels of my car up to every tree and sped up to insane speeds. But I could not muster the courage to leave my blood on the leaves and branches. I spent the next 12 hours contemplating how I could kill myself.
I had had suicidal ideations in the past, but I never actually planned for it. However, I thought I could have the best meal. I went to one of my favourite places where no one could find me for days and drank myself to death until my liver was no longer functioning. I went to the Royal Hotel and asked questions about the best steak to buy, the most expensive steak in the Royal Pub. I then walked to the bottle shop, but the shop was already closed because it was after 8:30 p.m.
I went home and emptied my alcohol portfolio and pretended I was going to the Best Companion's house to wash my clothes, sneaking the alcohol into my washing basket. I texted her, explaining all the reasons why I did not deserve to live. She hung up on me at first because my attitude was terrible, but then she just listened. I stayed on the phone with her until I started drinking. And then I wanted to be alone. I drank about three-quarters of a bottle of vodka before deciding this was not me. I could not bring myself to drink myself to death. I was not ready to die. I staggered home and flopped into bed. I quickly passed out.
Planning For The Future
I do not know what the future holds, employment-wise. I have valuable experience working with disabilities and peer work, but I am not ready to invest all my energy into full-time employment. I am not emotionally prepared to give all of myself to the participants again. I will need to learn to set boundaries to protect myself and ensure that I do not get too close to my participants, as I have done in the past.
I have had time to recuperate and get my energy back. I had worked myself into the ground and burnt myself out working full time, throwing myself into advocacy work, studying, and doing the Global Now Project. I was virtually working until midnight every night and relying on my medications to knock myself out so I could do it all over again the next day. Then, starting the day with a stiff coffee to get up and going, I would work until 6:30 p.m. at Uniting and then drive all over Western Sydney at One Door. Anyone would have reached their breaking point.
Moving forward, there needs to be a balance between working and doing the Global Now Project. Regardless of what I do, that project will always be a backdrop, as it is part of who I am. It is a project I have invested all my savings in and has the potential to change how mental health runs worldwide. The Global Now Project gives a starting point for any student, researcher, consumer, caregiver, or policymaker starting in the mental health field to know what is already out there before starting their journey. It has the potential to bring mental health services together, so they do not operate in silos but work together. I am incredibly proud of the project so far, and I hope to invest more time, energy, and money to ensure that it is something that will benefit everyone in the mental health system.
Whatever the future of my employment, my work ethic, tireless dedication to my occupations, and advocacy have put me in a position to make the most of the challenging work and receive financial benefits. Due to my commitment to my work, I know that I will make a lasting contribution to the operational and technological capacities in various fields as diverse as disabilities, mental health, and Chinese Medicine. I know I will further my understanding of many topics, including trauma, climate change, and emerging technologies like blockchain, to benefit everyone. I have put in the hard yards so that everyone, one day, will benefit.